Pregency and Abortion - My Feelings

I been busy praying.. the boys not feeling the best.. Mike was laid off for the winter. ( we were expecting this)
So the boys have enjoyed having daddy home. Kate been spending more time at Billy. That ok .. We are all learning and praying that all goes well for Kate and For Billy.
Mikey got a full time job.. whoot. :) Kate finished her Christmas shopping, i think the boys will LOVE the presents she got them..
Landon all been busy helping with key chains and bracelets... he hoping people will keep buying..:) Keep fighting..
Gene Veritas, a Huntington's blogger and a HD Advocate and is HD positive, has interviewed me about Kate's pregnancy. We have had many people make unkind remarks about the baby and Kate's decision to NOT test the baby while in the womb for the HD gene, and she chosen to have this child. and not terminate the pregnancy.
Believe it or not many people have told me that if the baby has JHD/HD it is our own fault.. (because we could have avoided this if we test the baby and terminate the pregnancy if it comes back positive).. This has happen not only on our HD Family site but in our local area.
It makes me sad that people can be so hateful toward my child and grandchild. I don't agree with pregnancy termination or abortion. I never have. I had people even ask me if I had the choice to test Kate before birth would have I aborted her.. The answer is NO! NEVER... it was never a thought or a idea that crossed my mind..
Kate feels the same about her tiny child. She has names picked out and is in love with this child already. She knows that she may have passed the HD gene on,and she knows that she most likely won't live to see the child grow up. But she also knows there is a good chance that she might NOT have passed the HD gene on and that there is hope in the research. She knows her child will bring joy and peace to us that she leaves behind.
My prayer is that her pregnancy keeps going normally, and her child will be welcomed in to this world with love and hope.
My prayer for those who say those unkind words to me and to those who believe that Kate is selfish.. my prayer for them is that they may find peace, that they can offer people love instead of anger and judgment because otherwise with out love and hope we are all defeated by Huntington's...
If we work together we can keep the fight and find a treatment!. We may not always agree with what each other does but we can offer love and not judgment.
I believe that Gene Veritas blog about the couple that terminated their pregnancy at 22 weeks needed to be told. I am sure it was painful for them and so very hard. I pray that they can heal. I also have been told that Kate's bay has no place in this world because we are not testing.. to that I say "God is in control and we are putting the baby and Kate in HIS HANDS, for he is our Creator and our Father, in Him we rest our worries. It says in bible that "i knew you in your mothers womb, I knitted you together" This tells me that GOD knows Kate's baby and He is in CONTROL and for that I am so thankful for

Christmas

it is the 11th.. Kate has dr appoint on the 22nd.. so excited for the next ultrasound. Kate been sick with morning sickness. But she doing well..and she is getting more excited.. she has picked out names for the baby.. i cant tell...:) she will tell once we know what is having...
Landon discovered there were many people sick with HD/jhd and he is asking why.. he wrote a letter to a doctor to tell them to stop messing around and find treatment!
He wanted warp up the cure and give it to kate..

Thank you Kate

I feel for my little girl.. She is so strong... I can't even began to know what she goes thur..
Her ability to live life to fullest and deal with her worries and stress is amazing... God must surly have her in his hands.
I have made many mistakes with raising my children, as I am human and not perfect at all. Having said that I can only say that I am proud to be Kate's mom.
I see all my children and there are days when I wonder why God blessed me with them. I can't say I always make the right choices with but I can say that I am thankful for them always...
Katelyn has much on her shoulders, more now with her pregnancy...I wish I could ease her mind and promise that all will be well..She knows it will be for it is in God's hands.
Kate told me that she felt that I was negative...So it made me take a invoice of myself..and it made me sad.. that perhaps there are times when the stress and worry overwhelms me. I than have to stop myself and pray.. I trust that God is in control and that his plan is not for harm...
and it also made want to fight harder for Kate and the kids with JHD/HD..It makes me mad that I hear there are research happening and that there is headway being made yet the victims of JHD/HD are not getting the help they need..
We are fighting for everything from SSI or SS to medical help. GRRRR...
We have to tell our doctors and therapist and any one else that we go to for help for our loved ones what Huntingtons Disease is and what is needed to help our loved ones. I don't know enough, but I am trying and I keep trying to learn-
I have learned that I can't go into the doctors office with Kate and just expect them to know how to help her..It makes her mad,that I voice my concerns and sometimes argue or fuss with the the medical personal, but,I feel if I don't than I am failing her as a mother and as her advocate.
We fight even at times with the victims of JHD/hd.. as we try to do what is best for them or the best we can do for them.
It rips me up inside to see Kate leaving us piece by piece yet she has shown me how to keep living and smiling and laughing, and for teaching me to hear, not just listen, for helping me to always find the positive in life!
So thank you Kate.. for helping your mom to learn to trust in God always and thank you for loving life and for your smile, Thank you for reminding me that you are still our Kate and we wouldn't want you any other way.

Psalm 92:13
Those that be planted in the house of the LORD shall flourish in the courts of our God.

one day at a time

Every Good and Perfect Gift Comes From Above!

Kate is Expecting a baby on July 4th. Scary.yes. worry, yes, but trusting in God is keeping us with hope and most of all it keeps us showing his love.
Who are we to question his creation?
He is in control.
His blessing are more than I can count.
Thank you God!

IOWA CITY

Iowa city,
We had so much fun hanging out and laughing and giggling. Kate's appointment went ok. We had so many moments that I will hold dear to my heart. We also had a fun time staying at the castle themed hotel. Landon says we have to stay again.. :) i love how much he makes us have fun and not dwell on the bad parts..
Our Lord was with us as we arrived safely and made it home without any car troubles or bad weather!!
The dr say that she had progressed :( as we expected, but they tell us that over all Kate is doing well.
Kate did great. She handled the appointments very well with out the irritability that has been there on past trips. Landon fell asleep.. he crashed on the floor and made everyone giggle..
We also raised enough money for Kate's new bed.. We are so grateful for all the love and prayers we have received from everyone.

2 Thessalonians 2
1Now we beseech you, brethren, by the coming of our Lord Jesus Christ, and by our gathering together unto him,2That ye be not soon shaken in mind, or be troubled, neither by spirit, nor by word, nor by letter as from us, as that the day of Christ is at hand.

so excited yet so shot

So much is happing and so fast.. Sue is home for a bit, with my DJ!! and so happy days.. Kate been so busy with her friend that she has not been around much. it ok ,, Landon is sick again.. :( bad cough and fever... back to dr and than off to set up for the benefit..

God be with us.. let us show your glory and praise your name, thank you for all you have give and all your blessings!

JDH IS INSANITY

yeah.. for real it is insane.. mood swings, crabby, and sleeplessness... and that just me..hahaha
I am at a lose i cant seem to find that middle ground with Kate..
I so worried that she is shutting her self down.. she seems to pull away more and more.. everyday..
I worry and yet I have to let her be Kate and let her live... it so hard.. i miss her hugs and her giggles..I wish i knew how to make her smile.. but i have to leave it in Gods hands.. because i cant handle this without his help.. and he gives me so many JHD families and loved ones to help me.. thank you to all of you!

i thank God..

With out God i could not do this.. God be with Kate..and help me to help her.. please

1Paul, and Silvanus, and Timotheus, unto the church of the Thessalonians which is in God the Father and in the Lord Jesus Christ: Grace be unto you, and peace, from God our Father, and the Lord Jesus Christ.

2We give thanks to God always for you all, making mention of you in our prayers;

3Remembering without ceasing your work of faith, and labour of love, and patience of hope in our Lord Jesus Christ, in the sight of God and our Father;

4Knowing, brethren beloved, your election of God.

5For our gospel came not unto you in word only, but also in power, and in the Holy Ghost, and in much assurance; as ye know what manner of men we were among you for your sake.

6And ye became followers of us, and of the Lord, having received the word in much affliction, with joy of the Holy Ghost.

Wow... i stirred the pot

So what a day.. and apparently I stirred the pot with my fundraising lies?? post .. I am soo sorry if I upset anyone.. Our Goals is to raise awareness and money for a treatment for JDH and HD..
I totally appreciate HDSA and all they do for awareness.. My problems is with the amounts..and i understand that u can earmark money for research.. which is great.. I guess I look at that the number one thing that should be done with the moneys raised is for research.. the more money the better the research.. 2 we should be taking care of our families on a basic level.. Asking them if the need food.. gas to get to dr's helping them find a lawyer when ssi or ss is denied.. yes I believe it can be done.. we love each other can Know what each of us go through with our loved ones and with ourselves..
I know that I have been blessed that my family has helped me to get Kate to and from Iowa city.. which 5 hours one way.. but i also have read and know of parents that cant afford to bring their kids to center of excellence because of cost of travel and lodging.. no to mention they cant afford the time off of work.. Why can we help them out.. to me that is more important than paying for t shirts to be given out at our walks..
I know it seems i am upset.. but i am not.. I just feel that we need to really look and ask our families what they need!