Friday, April 27, 2012

Finding Joy and Hope


So busy these days... Some times I forget to slow down!!
Kate and Baby are doing very good!
She is on meds for her chorea.. which seems to me helping but she says it makes her shake like leaf. But she is willing to take it till we talk to dr again. Kate and her Little brothers are closer than ever.. males me giggle..
Gabe feels "Vavaeh"

New days ahead

 We have been so busy, times seems to just slip away.. I could just stay in these days forever.. but at the same time We are so very excited for Kate to meet her baby girl in person.. to see Kate's face and to watch her heart grow the moment she is born!!

Kate asked me to be in the room with her as she delivers... this is an amazing honor and I am so happy to do for her. She also warned me that I can not fight with her boyfriend or she was kicking us both out.. :) I love her!!  I am not sure what I most excited about to meet my granddaughter or to see Kate's face when she meets her daughter.. I pray that Kate's daughter has her sense of humor and her giggle..
Kate had some scary days ..with high blood pressure and with baby not moving.. yet God has kept both Kate and Baby safe. Thank you God!!

I have something to voice.. and I pray that God Leads me.. that the words that I type may not offend that is not my intention..
I joined Facebook about 5 years ago??. Our lives have changes so much in those 5 years. I have met so many wonderful people and be able to reconnect with past friends! 
I joined on line support groups for JHD and HD.. and I have watch as people have worked very hard and put so much time a effort in to raising awareness for Huntington's .. I have been amazed and humbled at peoples ability to find ways to fight against a disease that at this time has no treatment.. 
This is a blessing for me..
I can't express how much I need to read blogs and talk to others who know what we are going Thur.. 
I am saddened to see so much discord and anger and pain in these support groups.. as we are all fighting the for the same thing.. I know that everyone has their own opinions and and reasons.. this is not to disregard any ones thoughts feelings or beliefs..
I can't understand why all the angry words.. and I understand why we are so protective of our work in raising awareness and our loved ones with HD and JHD .. My voice is asking 3 things
1. why fight? can we just talk and work out a comprise..
2. divided we fall..TOGETHER WE OVERCOME ALL
3. love one unto others as you would have them do to you
I may not understand everything that is happening, but I know that when someone talks to me about JHD or HD and I give them 3 web sites to visit and they tell me "wow i never knew".... to me that is what being an ADVOCATE is all about.
Now I give credit where credit is due and I feel hope and love from all my HD and JHD family..
I ask for all of us to come and pray and look to each other to build up and not tear down.. Please...
and if there is an issue that there is no peace to than I beg of you to let it go.. for if you hold on to it.. it will consume and there will be no peace for u... Anger breeds hate and hate will hold you back!!
I know this as I struggle with feelings of anger and Hate ..
I not asking you to say nothing if something is bothering  u.. I am asking that we do it with a goal of working together.. when we come at each other with hatred in our voices and hearts... nothing is helped and we are left feeling empty and with more anger that we had to start with..I only am making my feelings and thoughts known, we have lost so many to this disease...
I pray that we can come together and find a way to work together and show the world just how strong we are!!
I do not mean to trivialize anyone's thoughts or feelings!! You all are my HEROES!! 

God bless you all!!
I leave you with words from Jesus- these words have helped me and given me much peace when my mind and heart are in turmoil...  
   27 “But I say to you who hear, (AD)love your enemies, do good to those who hate you, 28 bless those who curse you, (AE)pray for those who [o]mistreat you. 29 (AF)Whoever hits you on the cheek, offer him the other also; and whoever takes away your [p]coat, do not withhold your [q]shirt from him either. 30 Give to everyone who asks of you, and whoever takes away what is yours, do not demand it back. 31 [r](AG)Treat others the same way you want [s]them to treat you. 32 (AH)If you love those who love you, what credit is that to you? For even sinners love those who love them. 33 If you do good to those who do good to you, what credit is that to you? For even sinners do the same. 34 (AI)If you lend to those from whom you expect to receive, what credit is that to you? Even sinners lend to sinners in order to receive back the same amount. 35 But (AJ)love your enemies, and do good, and lend, [t]expecting nothing in return; and your reward will be great, and you will be (AK)sons of (AL)the Most High; for He Himself is kind to ungrateful and evil men. 36 [u]Be merciful, just as your Father is merciful.
   37(AM)Do not judge, and you will not be judged; and do not condemn, and you will not be condemned; [v](AN)pardon, and you will be pardoned. 38 Give, and it will be given to you. They will [w]pour (AO)into your lap a (AP)good measure—pressed down, shaken together, and running over. For by your standard of measure it will be measured to you in return.”