Saturday, December 24, 2011

Merry Chritmas

We are bless with so many blessing this year. We have so much hope for fighting JHD/HD... and we are trusting God to hold us when we fall.
our family and friends have been so loving and supporting this year. Thank you from the bottom of our hearts.
We pray that each and everyone of you feel Christ's love. We know this time of year can be hard.. But we want you to know you are loved.
We sometimes forget to tell people that.
And we want you to know you are.

We are excited aout this upcomming year and Kate's Baby Boy.. :)
God Bless and Much Love.

Saturday, December 17, 2011


Today is Gabe's birthday he is 4 years old.

We had fun baking cookies and giggling and of course the 2nd annual flour fight.. (1/2 bag of flour was found on the floor..) ok maybe not quite that much..:)
But we had fun.. I love my "other" KT with the baby...
we always have fun making the cookies and such...

So Gene Veritas will be posting Kate story on his blog this weekend... Please read it...
and if I offend anyone, I am so sorry, that is not my intent. Our intent to offer our story not for people to pass judgment on but to offer what love we have.. so that people know that We trust in Our Lord to care for us. and that we are fighting to find cure for Huntington's. We want to thank Gene for writing on this hard issue.. it is not a place where i wish any one to be. We feel what we are choosing to do is the right thing to do in our family..It is our belief and our hope that treatment for HD can be found soon so that parents and medical personal can help out loved one with HD and those at risk..

Kate is doing well.. she is eating able to keep it down.. her pain level has tempered DOWN! whoop! (Thank You God) She seems to be finding her way thru this scary maze.. She smiles and laughs with us.. she gets made at mom and fusses at me.. She hollers at her little brothers when they are being naughty...we are family that lives in today and we leave tomorrow in Gods hands...We are not perfect nor do we have all the answers, but we do trust that our Father in heaven has all the answers and so we trust him..

Life is going well
We are Blessed to have loved ones,family and friends who loves us and offer love and hope to us.
. God bless you all and Merry Christmas and Happy New Year!

As our Creator, God knew us well even before we were born. Even while we were still in our mother's womb, He loved and had plans for us.

Luke 1 

39 Now Mary arose in those days and went into the hill country with haste, to a city of Judah, 40 and entered the house of Zacharias and greeted Elizabeth. 41 And it happened, when Elizabeth heard the greeting of Mary, that the babe leaped in her womb; and Elizabeth was filled with the Holy Spirit. 42 Then she spoke out with a loud voice and said, “Blessed are you among women, and blessed is the fruit of your womb! 43 But why is this granted to me, that the mother of my Lord should come to me? 44 For indeed, as soon as the voice of your greeting sounded in my ears, the babe leaped in my womb for joy. 45 Blessed is she who believed, for there will be a fulfillment of those things which were told her from the Lord.”
46 And Mary said:
“ My soul magnifies the Lord,
47 And my spirit has rejoiced in God my Savior.
48 For He has regarded the lowly state of His maidservant;
For behold, henceforth all generations will call me blessed.
49 For He who is mighty has done great things for me,
And holy is His name.
50 And His mercy is on those who fear Him
From generation to generation.
51 He has shown strength with His arm;
He has scattered the proud in the imagination of their hearts.
52 He has put down the mighty from their thrones,
And exalted the lowly.
53 He has filled the hungry with good things,
And the rich He has sent away empty.
54 He has helped His servant Israel,
In remembrance of His mercy,
55 As He spoke to our fathers,
To Abraham and to his seed forever.”

Wednesday, December 14, 2011

Pregency and Abortion - My Feelings

I been busy praying.. the boys not feeling the best.. Mike was laid off for the winter. ( we were expecting this)
So the boys have enjoyed having daddy home. Kate been spending more time at Billy. That ok .. We are all learning and praying that all goes well for Kate and For Billy.
Mikey got a full time job.. whoot. :) Kate finished her Christmas shopping, i think the boys will LOVE the presents she got them..
Landon all been busy helping with key chains and bracelets... he hoping people will keep buying..:) Keep fighting..
Gene Veritas, a Huntington's blogger and a HD Advocate and is HD positive, has interviewed me about Kate's pregnancy. We have had many people make unkind remarks about the baby and Kate's decision to NOT test the baby while in the womb for the HD gene, and she chosen to have this child. and not terminate the pregnancy.
Believe it or not many people have told me that if the baby has JHD/HD it is our own fault.. (because we could have avoided this if we test the baby and terminate the pregnancy if it comes back positive).. This has happen not only on our HD Family site but in our local area.
It makes me sad that people can be so hateful toward my child and grandchild. I don't agree with pregnancy termination or abortion. I never have. I had people even ask me if I had the choice to test Kate before birth would have I aborted her.. The answer is NO! NEVER... it was never a thought or a idea that crossed my mind..
Kate feels the same about her tiny child. She has names picked out and is in love with this child already. She knows that she may have passed the HD gene on,and she knows that she most likely won't live to see the child grow up. But she also knows there is a good chance that she might NOT have passed the HD gene on and that there is hope in the research. She knows her child will bring joy and peace to us that she leaves behind.
My prayer is that her pregnancy keeps going normally, and her child will be welcomed in to this world with love and hope.
My prayer for those who say those unkind words to me and to those who believe that Kate is selfish.. my prayer for them is that they may find peace, that they can offer people love instead of anger and judgment because otherwise with out love and hope we are all defeated by Huntington's...
If we work together we can keep the fight and find a treatment!. We may not always agree with what each other does but we can offer love and not judgment.
I believe that Gene Veritas blog about the couple that terminated their pregnancy at 22 weeks needed to be told. I am sure it was painful for them and so very hard. I pray that they can heal. I also have been told that Kate's bay has no place in this world because we are not testing.. to that I say "God is in control and we are putting the baby and Kate in HIS HANDS, for he is our Creator and our Father, in Him we rest our worries. It says in bible that "i knew you in your mothers womb, I knitted you together" This tells me that GOD knows Kate's baby and He is in CONTROL and for that I am so thankful for

Sunday, December 11, 2011


it is the 11th.. Kate has dr appoint on the 22nd.. so excited for the next ultrasound. Kate been sick with morning sickness. But she doing well..and she is getting more excited.. she has picked out names for the baby.. i cant tell...:) she will tell once we know what is having...
Landon discovered there were many people sick with HD/jhd and he is asking why.. he wrote a letter to a doctor to tell them to stop messing around and find treatment!
He wanted warp up the cure and give it to kate..

Thursday, December 1, 2011

Thank you Kate

I feel for my little girl.. She is so strong... I can't even began to know what she goes thur..
Her ability to live life to fullest and deal with her worries and stress is amazing... God must surly have her in his hands.
I have made many mistakes with raising my children, as I am human and not perfect at all. Having said that I can only say that I am proud to be Kate's mom.
I see all my children and there are days when I wonder why God blessed me with them. I can't say I always make the right choices with but I can say that I am thankful for them always...
Katelyn has much on her shoulders, more now with her pregnancy...I wish I could ease her mind and promise that all will be well..She knows it will be for it is in God's hands.
Kate told me that she felt that I was negative...So it made me take a invoice of myself..and it made me sad.. that perhaps there are times when the stress and worry overwhelms me. I than have to stop myself and pray.. I trust that God is in control and that his plan is not for harm...
and it also made want to fight harder for Kate and the kids with JHD/HD..It makes me mad that I hear there are research happening and that there is headway being made yet the victims of JHD/HD are not getting the help they need..
We are fighting for everything from SSI or SS to medical help. GRRRR...
We have to tell our doctors and therapist and any one else that we go to for help for our loved ones what Huntingtons Disease is and what is needed to help our loved ones. I don't know enough, but I am trying and I keep trying to learn-
I have learned that I can't go into the doctors office with Kate and just expect them to know how to help her..It makes her mad,that I voice my concerns and sometimes argue or fuss with the the medical personal, but,I feel if I don't than I am failing her as a mother and as her advocate.
We fight even at times with the victims of JHD/hd.. as we try to do what is best for them or the best we can do for them.
It rips me up inside to see Kate leaving us piece by piece yet she has shown me how to keep living and smiling and laughing, and for teaching me to hear, not just listen, for helping me to always find the positive in life!
So thank you Kate.. for helping your mom to learn to trust in God always and thank you for loving life and for your smile, Thank you for reminding me that you are still our Kate and we wouldn't want you any other way.

Psalm 92:13
Those that be planted in the house of the LORD shall flourish in the courts of our God.